An afternoon worth savoring and celebrating Baltimore’s extraordinary culinary accomplishments. Join fellow foodies at the Sandlot Baltimore to feast on delectable bites by the city’s hottest chef talent and sip stylish cocktails by Baltimore’s Bartenders Guild and local craft brews. With refreshing sights and sounds, relish in this epicurean adventure. Tickets are all inclusive with proceeds benefiting the Cystic Fibrosis Foundation.
“I have struggled with CF my entire life. I was diagnosed with CF when I was 4.5 at Johns Hopkins. Like most living with CF, I have been in and out of the hospital more times than I can count, my drug list is as long as my arm, and IV antibiotics became as predictable as the change in seasons. After years of battling the disease I was given a second chance at life when I received a double lung transplant in June 2016. Since my transplant, my lung function has been higher than I ever thought it could be, and two years after my transplant, I was able to marry my best friend! Although my wedding is a day I will never forget, it also taught me that transplant is not a cure. After my wedding my lung function fell, and I have been working to regain it once again. Although I still struggle with CF and transplant compilation, I treasure everyday and am grateful for my family and friends, my doctors and nurses, the CF foundation and my donor. They are the reason that I am alive today.”
“Living with CF makes you appreciate the little things. Whether it be nature, laughing with your best friend, or dancing to your favorite song, for us many of these precious memories were made in the hospital.
Johns Hopkins Hospital was our second home, a place we would spend our days filled with medications, procedures, and treatments just to stay alive. It is also the reason we met.
After receiving life-saving double lung transplants within 6 months of each other, our doctors told us that we were finally allowed to meet, no longer restricted by the Cystic Fibrosis Foundation’s Infection Prevention and Control Care Guidelines that prevents more than one CF patient from being in a room at a time.
The first time we could be in the same room together was one of the best feelings in the world. The very first thing we did was lift up our shirts to compare battle wounds. Suddenly all the scars that had previously made us feel so insecure felt just right. Like so many of the brand new experiences we have been blessed with since transplant, the feeling of being hug your best friend is indescribable.
One of the hardest parts of cystic fibrosis can be the isolation that is felt in this disease. Weeks spent mostly alone in a hospital room, trips missed because of complicated treatments that aren’t travel friendly, and the inability to spend time with others who are going through the same thing, because of the CFF mandated infection precautions that have to be taken.
Lung Transplant had been such a blessing, but still comes with many medications, restrictions, and of course all of the other CF complications in the other areas of the body where the disease is still present.
Because of this disease, we have learned to be grateful for every laugh, smile, hug, and memory we have together. Cystic Fibrosis medicine has advanced dramatically over the years because of people like YOU. We still have a ways to go, so we have both pledged to continue to fight for CF until it stands for Cure Found, and we would love you to be a part of this journey with us.”
“Hi, my name is Jordan Magsamen and I am 24 years old. I was diagnosed with Cystic Fibrosis when I was 17 months old. I am in the chapter of my life where I try every day to better myself for my wellbeing. Whether that be sleeping an extra few hours, doubling up on my treatments or going to the gym. I am at a crucial age where taking care of myself must come first. I used to get anxious about this chapter of my life but now I can truly just smile about it and thank all of my supporters for always pushing me to do everything that was needed to survive. For my age my lung function is great and I cherish that every day. With today’s research and break throughs in treatments and drugs, I am able to breathe a little bit easier. Hopefully within the next few years I will be able to take a drug like Orkambi and Symdeko, a part of the triple combination for a longer, healthier life. I like to volunteer for the CF Foundation and participate in great events, just like Feastival to raise funds for more research. Being a CF advocate, raising awareness and funds, to hopefully change my life and that of others with CF. We still have a lot of work to do, but we are well on our way to life-changing treatments and hopefully, a cure! Please join me on this journey and make a difference.”
Kaite Rose is a dancing giggle fest! Diagnosed with Cystic Fibrosis at 3 months, she is the only one of her huge extended family to have the disease. With such a close and loving family, her childhood was chaotic and exciting! And her parents never let her miss any treatments. Finding time for routine in the midst of chaos set the foundation of how important daily care was for health, happiness and maintaining the ability to pursue her dreams.
Originally from Philadelphia, Kaite Rose was one of the first patients to be blessed with the vest from DuPont Hospital for Children. This innovative machine gave her the independence to do her treatments without having to depend on her parents’ to get home from work. This changed everything. She was now able to maintain her health and medical routine without missing a beat with her busy school and sport schedule. This life changer kept her healthy and happy as she ran track in high school and college. After she graduated Neumann University with her Bachelor of Arts in Communications, she realized maintaining her health would be more difficult without an organized sport to keep her in check. So when she was offered a spot on the original Team CF Cycling Team, she was ecstatic! As a competitive mountain bike cyclist, she found her passion promoting healthy active living for people living with Cystic Fibrosis! The experience also left her a bit of an adrenaline junkie! Since graduating from Neumann University, she has run a marathon, cycled from London to Paris with her Dad and took up rock climbing!
She amplified her voice by a few thousand watts when she joined the Mix Morning Show right here in Baltimore! She laughed her way into the mornings, fulfilling both her career objectives and her passion of representing and reaching the CF community, all before 10am!
Today, Kaite Rose is excited to continue her work with the Cystic Fibrosis Foundation, especially in the time of Social Media where she can connect with CF’ers around the world! The Cystic Fibrosis Foundation is SO CLOSE TO A CURE and it’s thanks to people like you and events like this! She wants to send a big hug and a huge ‘THANK YOU’ to anyone who has donated in the past, plans on donating today or in the future! Every dollar that goes to the Cystic Fibrosis Foundation has helped fund not only to research for a cure to extend the lives of those with CF, but treatments that make the quality of lives of those living with CF a little more manageable and a whole lot more enjoyable and fulfilling! We aren’t there yet, but we can see the finish line! Let’s sprint!
“My name is Laney Siems. I am 24 years old and was diagnosed with cystic fibrosis when I was five months old. I am currently living in New York City with a job at Single Platform and I love it! I have had to think about my future and what it holds for me. I used to get nervous about this next chapter in my life but, with research getting better every day and the breakthrough of drugs like Orkambi and Symdeko, my worries about the future have become a little less stressful. Although things are progressing, we are nowhere near finished with this fight for a cure. Thank you so much for all you have done for me and the foundation. Also, thank you to the foundation and my doctors for all their support and hard work.
With your help, we have gained tremendous momentum in our quest for breakthroughs in treatment and care, and we are truly making a difference in the lives of people with CF. This is a reality because of events like Feastival, and you! We are humbled and grateful for your tremendous and continued support of the Cystic Fibrosis Foundation.”
Colleen is a lover, a fighter, a healer, a feminist, and oh yeah, a SURVIVOR!
My name is Colleen and I was diagnosed with cystic fibrosis at birth, under a libra sun and aquarius moon, and came out with a tenacious will to live. At only one day old, my fragile 5.8lb body was put to the test as I was rushed to Johns Hopkins from GMBC for intensive surgery because of a common life-threatening CF complication, meconium ileus. Riding in an ambulance through the streets of Baltimore in the middle of the excitement and energy of the Orioles celebrating their WORLD SERIES win, I began my lifelong fight to survive.
Aware from a young age about the devastation of this disease, I grew up with friends with CF who never made it to adulthood. I was determined to beat these odds, and do whatever I could to help others from a similar fate.
So I learned everything I could about CF, including what the Cystic Fibrosis Foundation was doing. Inspired to be a part of the efforts to find a cure, I joined my first medical trial at age 8, and branched out from my parents’ Great Strides walk team to form my very own "Colleen’s Team" at age 12.
I later became an Ambassador for CF, spreading awareness about my experience with this disease through public speaking, online fundraising, and a yearly letter writing campaign for Great Strides. As my illness progressed, each day became a challenge to keep going. By my 30th birthday, I was on oxygen full-time, struggling to breathe, and most days I only had enough energy to do my round the clock treatments and brush my teeth. During this time, I was spending more of my time as an inpatient at Hopkins than in my own home. Not being one to give up, I had to get myself strong enough for transplant, and incredibly, a year later and a month after my 31st birthday I received the most important call of my life.
I hurried to the hospital, hoping and praying this terrifying surgery, a DOUBLE LUNG TRANSPLANT would be successful.
I woke up from surgery the next day, Thanksgiving Day, with SO MUCH to be grateful for. I started breathing over the ventilator, I was desperate to take the first deep breath with non-diseased lungs. And only 12 days later, I walked right out of Hopkins with a HUGE smile on my face!
I truly celebrate every part of my journey, all the ups and downs along the way, grateful for every breath. From all my health struggles, through divorce and coming out of the closet, my life has been a wild ride so far, and I look forward to all the challenges to come. What I have learned through this life of ups and downs is that we exist and thrive through love.
When I am up, I try to lift others up too. Let them know they are loved, that I believe in them! When I am down, I show gratefulness to the ones who are by my side. This has carried me through my whole life, and it is what makes my life whole.
I continue this battle against cystic fibrosis today, 35 years young and advocating for all CF patients, with a focus on those who have transplants, and are still waiting for one.